Frequently Asked Questions

A: Our official diagnosis came on November 7th 2007, the devastating news delivered to us by a visiting specialist from OHSU, after a brief examination of Peyton and Kayla.  Peyton was 10 years old, Kayla was 7.  This diagnosis was finally arrived at after over 7 years of on and off testing.  The doctors first noticed an enlarged spleen in Kayla as an infant, and then found the same in Peyton.  Many tests were run, and a few years later a thorough examination at OHSU with several doctors still could not find a reason for the enlarged spleen.  It was not until Peyton was 8 years old that the first neurological symptoms began to occur.  It was another year and half, and several doctors, before the official diagnosis was made.