(Last Update 1/21/2016)
Please help us raise awareness and funds by spreading the word about this deadly disease known as "Childhood Alzheimer's"
On November 9th, 2007 we heard the words that no parent should have to hear: Your son has a neuro-degenerative disease. It is Terminal, and there is no cure. And, your daughter has it too.
Niemann Pick Type C is a devastating disease that affects the brain, liver, spleen, and lungs. It causes problems with speech, swallowing, balance, and fine motor skills.
We were told there was no hope. But, now new therapies are beginning to emerge, that can help slow the progression of the disease, and possibly lead to a cure! This was made possible by all of the generous supporters who gave their time, money, and prayers. We have been so overwhelmed by the support of people all over the world, who are truely making a difference. Please keep the momentum going, and continue to support the Hadley Hope Fund and find a Cure for Niemann Pick Type C!
Peyton & Kayla Medical Fund
. This seperate fund was set up to help defray costs associated with treatments for Peyton and Kayla. Click here
to donate. Please note: This donation is seperate from the Hadley Hope Fund, and is not eligible for a tax deduction.
Hadley Hope Fund
PO BOX 8420
Medford, OR 97501
Hadley Hope Fund is a Federal 501(c)3 Non-Profit Organization. Tax ID 68-0668891
Dedicated to funding ethical research to accelerate therapies and a cure for Niemann- Pick Type C disease (NPC), better known as Childhood Alzheimers.