The Hadley family, the Hadley Hope Fund Board of Directors, and all the NPC families, would like to thank everyone for \u00a0supporting research to find a cure for Niemann-Pick Type C Disease.\u00a0 2012 was another overwhelming year of support, both financially and personally, and we are in sincere gratitude to for your continued thoughts and prayers.<\/p>\n
As our last newsletter stated, we have had a lot of good news and promising results, with Peyton and Kayla\u2019s continued treatment with Cyclodextrin.\u00a0 And, we are very excited about the upcoming clinical trial that will lead to more NPC patients getting treatment.\u00a0 It is amazing to reflect back at the advances that have been made in treatments in NPC, but we realize there is still much more to be done until we can claim victory over this devastating disease.\u00a0 That is why we will continue to persevere in our mission to find a cure for ALL NPC patients, and to always continue the fight.\u00a0 We sincerely thank you for joining us in this quest!\u00a0 Let\u2019s make 2013 an even better year for Hope!<\/p>\nOther News:
\nIf anyone is interested in a volunteer position, and can spare a couple hours per week, the Hadley Hope Fund is looking for someone for administration involving donation spreadsheets, financial records, deposits, tax donation letters, and Facebook cause updates.\u00a0 This person will need some experience with spreadsheets\/Word documents and would be working with our board Treasurer.\n
Also, if anyone knows of a \u00a0registered nurse in the Medford area certified\/trained in accessing ports, and could assist with our home infusions, please let us know!<\/p>\n