Miracles do happen.<\/p>\n5 Years ago, 2 of our kids were diagnosed with a rare, degenerative, terminal disease. We were told there is no cure, or therapies available, and to go home and hug our kids, and wait for the inevitable. 5 Year Reflection Miracles do happen. 5 Years ago, 2 of our kids were diagnosed with a rare, degenerative, terminal disease. We were told there is no cure, or therapies available, and to go home and hug our kids, and wait for the inevitable. 3 \u00bd Years ago the word Cyclodextrin was first spoken in…<\/p>\n","protected":false},"author":3,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"footnotes":""},"_links":{"self":[{"href":"https:\/\/hadleyhope.com\/wp-json\/wp\/v2\/pages\/179"}],"collection":[{"href":"https:\/\/hadleyhope.com\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/hadleyhope.com\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/hadleyhope.com\/wp-json\/wp\/v2\/users\/3"}],"replies":[{"embeddable":true,"href":"https:\/\/hadleyhope.com\/wp-json\/wp\/v2\/comments?post=179"}],"version-history":[{"count":1,"href":"https:\/\/hadleyhope.com\/wp-json\/wp\/v2\/pages\/179\/revisions"}],"predecessor-version":[{"id":262,"href":"https:\/\/hadleyhope.com\/wp-json\/wp\/v2\/pages\/179\/revisions\/262"}],"wp:attachment":[{"href":"https:\/\/hadleyhope.com\/wp-json\/wp\/v2\/media?parent=179"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}
\n3 \u00bd Years ago the word Cyclodextrin was first spoken in Niemann Pick Disease research.
\n2 Years ago our kids start receiving infusions of the compound Cyclodextrin.
\n1 Year ago, our kids also start receiving injections into the CNS with Cyclodextrin.
\nToday, all of our kids\u2019 Physicians see no progress in the disease within the last 2 years.
\nToday, there are over a dozen kids in 4 countries receiving Cyclodextrin treatments.
\nToday, the NIH is starting a clinical trial with Cyclodextrin, so that 9 more kids will start treatments.
\nNext year, if all goes well, the NIH will begin Phase II of the trial, so that many more NPC patients can begin treatments, world-wide.\nWe realize it is far too early to claim victory over this devastating disease, and Cyclodextrin may or may not be a \u201ccure\u201d. But, to have a new therapy available in such a short time, that can help slow the progress of the disease, is nothing less than a miracle.
\nPlease keep the prayers\/thoughts\/wishes\/good vibes coming. We Know they are working\u2026\u2026\nBlessings,
\nBryan & Laura
\nwww.hadleyhope.com<\/a>\n","protected":false},"excerpt":{"rendered":"