{"id":176,"date":"2020-09-11T10:56:09","date_gmt":"2020-09-11T17:56:09","guid":{"rendered":"https:\/\/hadleyhope.scarabmedia.com\/?page_id=176"},"modified":"2020-09-22T08:19:32","modified_gmt":"2020-09-22T15:19:32","slug":"may-update-2","status":"publish","type":"page","link":"https:\/\/hadleyhope.com\/may-update-2\/","title":{"rendered":"May Update 3"},"content":{"rendered":"<h2>\n\t\tMay Update 2\n\t<\/h2>\n\tWow.\u00a0 Summer is almost here already.\u00a0 Another school year passing as time is flying by\u2026.<br \/>\nPeyton is finishing his sophomore year at South Medford High, and enjoys seeing his old friends, and making new ones (especially the staff, that absolutely love his sense of humor!)\u00a0 \u00a0Peyton is playing Bocce Ball with the Special Olympics, and having a great time.<br \/>\nKayla is finishing 7<sup>th<\/sup>\u00a0grade, and looking forward to \u201coutdoor school\u201d the last week of school.\u00a0 This is \u201cLearning\u201d at the beach\u2026.\u00a0 She just finished Track where she ran the 100 &amp;200 meters, and did the shot put!<br \/>\nJonah finishes 4<sup>th<\/sup>\u00a0grade, and is currently playing baseball, where his Major Mariners team has only 1 loss so far this year!\n<p>There was some bad news a couple weeks ago regarding the Clinical Trial at the NIH, where they just started treating NPC patients with Cyclodextrin.\u00a0 They had to put the trial \u201con hold\u201d for now, as they are going to have to change the way the drug is delivered.\u00a0 Fortunately, this does not affect Peyton and Kayla\u2019s treatments at all, but it is sad that more NPC children are going to have to wait longer now before they can start the treatments.\u00a0 We pray it won\u2019t be long, and we\u2019ll do anything we can to help speed up the process.\u00a0 Peyton and Kayla continue to do very well with their treatments, and are very much enjoying the freedom of the home infusions!<\/p>\n<p>And finally, only a little more than 2 weeks before our next fundraiser, Hadley Hope\u2019s Vegas in the Valley!!!\u00a0 So, please, go online now and purchase your tickets, and help us make this 4<sup>th<\/sup> annual event the best yet!<\/p>\nBlessings,<br \/>\nBryan &amp; Laura<br \/>\n<a href=\"https:\/\/hadleyhope.com\/\">www.hadleyhope.com<\/a>\n","protected":false},"excerpt":{"rendered":"<p>May Update 2 Wow.\u00a0 Summer is almost here already.\u00a0 Another school year passing as time is flying by\u2026. Peyton is finishing his sophomore year at South Medford High, and enjoys seeing his old friends, and making new ones (especially the staff, that absolutely love his sense of humor!)\u00a0 \u00a0Peyton is playing Bocce Ball with the&hellip;<\/p>\n","protected":false},"author":3,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"footnotes":""},"_links":{"self":[{"href":"https:\/\/hadleyhope.com\/wp-json\/wp\/v2\/pages\/176"}],"collection":[{"href":"https:\/\/hadleyhope.com\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/hadleyhope.com\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/hadleyhope.com\/wp-json\/wp\/v2\/users\/3"}],"replies":[{"embeddable":true,"href":"https:\/\/hadleyhope.com\/wp-json\/wp\/v2\/comments?post=176"}],"version-history":[{"count":2,"href":"https:\/\/hadleyhope.com\/wp-json\/wp\/v2\/pages\/176\/revisions"}],"predecessor-version":[{"id":248,"href":"https:\/\/hadleyhope.com\/wp-json\/wp\/v2\/pages\/176\/revisions\/248"}],"wp:attachment":[{"href":"https:\/\/hadleyhope.com\/wp-json\/wp\/v2\/media?parent=176"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}