{"id":155,"date":"2020-09-11T10:17:02","date_gmt":"2020-09-11T17:17:02","guid":{"rendered":"https:\/\/hadleyhope.scarabmedia.com\/?page_id=155"},"modified":"2020-09-21T12:34:00","modified_gmt":"2020-09-21T19:34:00","slug":"ways-to-help","status":"publish","type":"page","link":"https:\/\/hadleyhope.com\/ways-to-help\/","title":{"rendered":"Ways to Help"},"content":{"rendered":"<h2>\n\t\tWays to Help\n\t<\/h2>\n\tToday is world Rare Disease Day, yes, because Leap Day is a rare day&#8230;..<br \/>\nOn this day organizations all over the world combine to help spread awareness about rare diseases.\u00a0 And, of course, we will highlight Niemann Pick Type C disease, one of the &#8220;rarest of the rare&#8221; with only around 500 known cases worldwide.<br \/>\nSo, we would like to share a video with you.\u00a0 It was very well done, and is very touching (have tissue ready) detailing the struggles the children, their families, and the Dr&#8217;s all face.\u00a0 This video could represent any one of the NPC patients.\u00a0 We have all been there.\u00a0 &#8220;Building 10&#8221;.\u00a0 &#8220;The Children&#8217;s Inn&#8221;. These are amazing places that help children\/patients, but so scary at the same time to have to visit.\u00a0 The child&#8217;s candid comments about the disease would have been very similar to Peyton&#8217;s just a couple years ago&#8230;\n<p><a href=\"http:\/\/america.aljazeera.com\/watch\/shows\/morning-news\/2016\/2\/medical-mystery-looms-over-maryland-hospital.html\">http:\/\/america.aljazeera.com\/watch\/shows\/morning-news\/2016\/2\/medical-mystery-looms-over-maryland-hospital.html<\/a><\/p>\n<p>ALSO: here are 3 FREE ways YOU can help fight NPC Disease:<\/p>\n1.\u00a0 Shop Amazon Smile:\u00a0 This is the same as Amazon, except everything you buy on their Smile site, they give a portion back to your favorite charity.\u00a0 Doesn&#8217;t cost you anything extra. Just go to:\u00a0\u00a0<a href=\"http:\/\/smile.amazon.com\/\">http:\/\/smile.amazon.com\/<\/a>\u00a0and sign your favorite charity up (hopefully the Hadley Hope Fund!)<br \/>\n2. Shop Fred Meyer\/Kroger.\u00a0 If you have a rewards card, then scan that every time you shop, and they give a portion back to Hadley Hope.\u00a0 Sign up here:\u00a0\u00a0<a href=\"https:\/\/www.fredmeyer.com\/topic\/community-rewards-4\">https:\/\/www.fredmeyer.com\/topic\/community-rewards-4<\/a>\nThank You all for your continued support!<br \/>\nBryan and Laura<br \/>\n<a href=\"https:\/\/hadleyhope.com\/\">www.hadleyhope.com<\/a>\n","protected":false},"excerpt":{"rendered":"<p>Ways to Help Today is world Rare Disease Day, yes, because Leap Day is a rare day&#8230;.. On this day organizations all over the world combine to help spread awareness about rare diseases.\u00a0 And, of course, we will highlight Niemann Pick Type C disease, one of the &#8220;rarest of the rare&#8221; with only around 500&hellip;<\/p>\n","protected":false},"author":3,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"footnotes":""},"_links":{"self":[{"href":"https:\/\/hadleyhope.com\/wp-json\/wp\/v2\/pages\/155"}],"collection":[{"href":"https:\/\/hadleyhope.com\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/hadleyhope.com\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/hadleyhope.com\/wp-json\/wp\/v2\/users\/3"}],"replies":[{"embeddable":true,"href":"https:\/\/hadleyhope.com\/wp-json\/wp\/v2\/comments?post=155"}],"version-history":[{"count":2,"href":"https:\/\/hadleyhope.com\/wp-json\/wp\/v2\/pages\/155\/revisions"}],"predecessor-version":[{"id":237,"href":"https:\/\/hadleyhope.com\/wp-json\/wp\/v2\/pages\/155\/revisions\/237"}],"wp:attachment":[{"href":"https:\/\/hadleyhope.com\/wp-json\/wp\/v2\/media?parent=155"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}