{"id":146,"date":"2020-09-11T10:12:02","date_gmt":"2020-09-11T17:12:02","guid":{"rendered":"https:\/\/hadleyhope.scarabmedia.com\/?page_id=146"},"modified":"2020-09-11T10:12:54","modified_gmt":"2020-09-11T17:12:54","slug":"feb-update","status":"publish","type":"page","link":"https:\/\/hadleyhope.com\/feb-update\/","title":{"rendered":"Feb. Update"},"content":{"rendered":"

\n\t\tFeb. Update\n\t<\/h2>\n\tWe’ve survived the cold, enjoyed the snow, and now looking forward to warmer weather hopefully soon!\u00a0 Peyton misses riding his bike! (kinda)
\nHe continues to do fairly well, all things considered.\u00a0 He still works out at the YMCA and at home, and enjoys cooking at the “restaurant” at his school.\u00a0 Seizures continue to be a problem, and we constantly have to change medications to try and control them.\u00a0 He did have to have a feeding tube installed 2 months ago, and he was obviously not happy about that, it was hard on all of us.\u00a0 But, he can still eat and enjoy meals with us, it’s just much easier now to supplement his diet to gain some weight, and keep him hydrated.\nKayla continues to do well, and is getting all A’s and B’s in school!\u00a0 She’s still singing in a couple choirs, and just got her first job as a food server at the Manor!\u00a0 She’s very excited, and can’t wait to start spending $$.
\nJonah is still playing basketball, and now baseball at the same time.\u00a0 He and a few kids at school started their own club:\u00a0 Rubik’s Cube Club.\u00a0 Classic.
\nGood News – The Clinical Trial for Cyclodextrin should be nearing the end soon, as we now have 47 of the 51 patients we need enrolled.\u00a0 We have a few more “in the works”, so hopefully we can finish the trial soon, and start the process of getting this drug approved!!\u00a0 Please keep praying for this success!\nAnd, this is the time of the year again for the Polar Plunge for Special Olympics.\u00a0 The picture below is of Peyton participating in Bocce a few years ago.\u00a0 Please consider donating to this great cause for all the Special Olympic athletes!\u00a0 In full disclosure, Bryan won’t be able to jump this year.\u00a0 However, if we reach his goal of $250, he will do the “ice bucket challenge” on a cold rainy day and post in online.\u00a0 It’s for the kids.\u00a0 :-)
\nDonate here:
\nClick here to visit my personal page.<\/a>
\nIf the text above does not appear as a clickable link, you can visit the web address:
\nhttp:\/\/soor.convio.net\/site\/TR?px=1006235&pg=personal&fr_id=1081&et=udU6b7OF5SiKMtAeyvcDZQ&s_tafId=1147<\/a>\nThank you as always for all of your prayers and well wishes, we could not do this without all of your support!
\nBryan and Laura
\nwww.hadleyhope.com<\/a>\n","protected":false},"excerpt":{"rendered":"

Feb. Update We’ve survived the cold, enjoyed the snow, and now looking forward to warmer weather hopefully soon!\u00a0 Peyton misses riding his bike! (kinda) He continues to do fairly well, all things considered.\u00a0 He still works out at the YMCA and at home, and enjoys cooking at the “restaurant” at his school.\u00a0 Seizures continue to…<\/p>\n","protected":false},"author":3,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"footnotes":""},"_links":{"self":[{"href":"https:\/\/hadleyhope.com\/wp-json\/wp\/v2\/pages\/146"}],"collection":[{"href":"https:\/\/hadleyhope.com\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/hadleyhope.com\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/hadleyhope.com\/wp-json\/wp\/v2\/users\/3"}],"replies":[{"embeddable":true,"href":"https:\/\/hadleyhope.com\/wp-json\/wp\/v2\/comments?post=146"}],"version-history":[{"count":0,"href":"https:\/\/hadleyhope.com\/wp-json\/wp\/v2\/pages\/146\/revisions"}],"wp:attachment":[{"href":"https:\/\/hadleyhope.com\/wp-json\/wp\/v2\/media?parent=146"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}