Welcome Patients/Families/Caregivers/Physicians of Niemann Pick Type-C. This webpage was designed to be a resource for all those affected by NPC disease, that consolidates actual experiences and conversations from patients and their families into one place. We hope you find this site helpful as you navigate your journey in NPC, and if you have anything to add please let us know!
Question: Does anyone have a problem with mucus pooling in the throat. C is experiencing really thick mucus and even though he is on glycopyrronium injections to dry up secretions, it doesn’t seem to be working. This is causing him to choke really badly. He is on a modified diet and thickened fluids but is…Read More