Hadley Hope - Raising Awareness of Niemann- Pick Type C Disease


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Homepage News
03/10/2012February Update
01/24/2012January Update
12/18/2011December Update
12/18/2011NIH Cyclodextrin Clinical Trial Update
11/03/2011November Update
09/13/2011September Update
08/01/2011July Update
07/28/2011Road To Discovery
04/26/2011AP Article on NPC and Rare Diseases
12/09/2010Possible Biomarkers in NPC Found with help from Hadley Hope Fund!
12/02/2010Cyclodextrin Infusion Approval for Peyton to treat Niemann Pick Type C
11/09/2010Newborn Screening for NPC?
10/04/2010FDA Approves new protocol for Cyclodextrin Delivery in NPC
08/09/2010SOAR-NPC Helps NIH in Possible New Compound
08/09/2010More Blood Samples Needed!
06/18/2010May Update
05/18/2010Cyclodextrin Receives Orphan Drug Status
03/31/2010NPC drug approved in Canada, but not U.S.
03/24/2010March Update
03/16/2010FDA Denies Zavesca as approved drug for NPC

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