Hadley Hope - Raising Awareness of Niemann- Pick Type C Disease
 

 

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February Update

We sincerely want to thank everyone who sent their thoughts and prayers our way after the last update, we greatly appreciate the support!We returned from Oakland after receiving our first IT injection of cyclodextrin.  It was a long trip, with a lot of baseline testing done, but the kids were troopers and did not complain.  The actual injections were over quick, and went very well, and the kids were definitely very spirited afterward!  They were very energetic, talkative, and active….especially Peyton, which was wonderful to see!  We truly believe the treatments are working, and quickly!We will keep you updated.  Keep the prayers coming!



 


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