Hadley Hope - Raising Awareness of Niemann- Pick Type C Disease


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FDA Approves new protocol for Cyclodextrin Delivery in NPC

The FDA has approved the use of cyclodextrin to possibly treat NPC children, by delivery directly into the CNS.  Twin Girls in Reno are set to start this new treatment this month!

Read the full story:  http://blogs.wsj.com/health/2010/09/23/orphan-drug-update-one-step-closer-for-cyclodextrin/

 And, see the Oakland news coverage at:  http://www.youtube.com/watch?v=DmZ5JtYpQZc&feature=related




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